Laughter, the Best Medicine

Share a link to a new blog you've found or a new friend you've made.  

As soon as it arrived, I always looked up "Laughter, the Best Medicine" in the Reader's Digest. As a child I plagued my family reading the jokes aloud.  I loved it, though, when I found one that made someone laugh.  The sound of laughter has to be one of the sweetest in the world.  Well, unless you laugh like this.

Life is lighter with laughter and thanks to this Diabetes Blog Week, I found this blog that I look forward to sharing with William.  As I often tell him, you can't change what life throws your way, only how you react to it.  

Thanks for reading this week.  My blog goes way back, back before diabetes reared its ugly head. With momentum from this week, perhaps I can roll forward.

Thanks to Scott Benner of Arden's Day, on whose podcast I first heard about this challenge, and to Karen Graffeo of Bitter-Sweet Diabetes who had the idea to connect the diabetes community through blogging.

The Best Dressed Mom

If you have been blogging for a while, what is your favorite sentence or blogpost that you have ever written?  Is it diabetes related or just life related?  If you are a new blogger and don't have a favorite yet, tell us what motivated you to start sharing your story by writing a blog?  (Thank you Laddie of Test Guess and Go for suggesting this topic.)

My kids could instantly answer this question as it has become a family inside joke:  "What's that smell?"  The joke is at my expense, but lovingly.  More concerned about facilitating the activities of my children, running our mini-farm, and never a fashionista, often pressed for time, I have found myself in some embarrassing situations. 

Nothing says love like being on time to pick up your teenage daughter from an evening art class, but finding that in your haste to do chores, you have chicken sh*t all over your jacket.  Few things make your children more proud than horse poo on your shoes while touring a potential university.

How does this relate to Blogging Diabetes Week?  As parents of a child with diabetes, it is nearly universal that our first reaction is how could I have prevented this from happening and what did I do wrong?  We are assured that we did nothing wrong, that there is nothing to prevent it, and yet, we hear mixed messages as they continue to search for a cure.  It could have been triggered by a virus, our food sources and composition has changed, we are too anti-bacterial and anti-microbial in our search for cleanliness.  Our kids don't get dirty enough and play in dirt.  

At about age 5, William liked growing carrots

Dirt?  We had plenty of that.  Micro-organisms?  Check out our creek.  We've had chickens, dogs, cats, horses, rescued birds and small mammals, fish (not to mention fishing), hamsters, to name but a few.  We have gardened and even eaten a few bugs.  I think they need to keep searching.  

Foods on Friday

Today's assignment: Write a post documenting what you eat in a day!  Feel free to add links to recommended recipes/shops/whatever.  Make it an ideal day or a come-as-you-are day – no judgments either way.  

(Nothing written on this blog is intended to give medical advice or suggestions but is only our own personal account.  If you have medical questions, please consult your doctor.)

You really want to know?  This is not going to be an ideal day, I warn you in advance.  I try to fill my home with fresh made food, with food as close to nature as possible and as unprocessed as possible. One of William's favorite dishes is a cauliflower casserole.  Perhaps you should see a less perfect side of us. Today, I'm going to talk about two foods we don't eat often, but just coincided with today. (Really!)

One of the first things you hear on diagnosis is that the patient can eat anything anyone else can eat if they just bolus for it, which is both true and utterly simplistic.  This ignores that some foods will have you questioning your child in StuffMart, "Are you high again?" risking a report to CPS.  All carbohydrates are not created equal.  One of those foods that can be challenging is breakfast cereal.  

William would like to eat breakfast cereal often but it results in a very sudden, very steep rise in blood glucose.  This morning, he had slightly over a serving of Chocolate Cheerios with 1 cup of 2% milk.  He will only eat cereal if his BG is on the lower side.  It was 87 this morning.  He pre-bolused at 9:24 a.m., waited about 10 minutes and started eating.  I headed to the barn to feed our horses. Normally, as soon as I see the rise start, we add a temporary basal insulin rate of 50% for 1/2 hour to an hour, but I missed it.  I texted him and he put it on at this point, about forty minutes after eating.

BG 142 and double arrows up (quickly rising)

The temporary basal helps him with keeping the peak lower and he topped out at 180.  By three hours later and lunch time, he was down to 125, not too bad.  This seems to work for us.

For lunch, he made himself two "hockey pucks" (chicken patties) with spaghetti sauce and melted cheese on top, no buns.  For a side, he roasted broccoli with melted cheese. 

He is going to practice golf today and go to Tae Kwon Do practice, exercise affording the ability to hand a little more of a carb load for dinner.  Tonight will be pizza and a movie, a much anticipated treat for all parties.  Pizza has a bad reputation in the diabetes world.  Loaded with carbs and fat, it can be difficult to manage.  

For us, we've found that the two most popular delivery pizzas do not mix well with diabetes.  Sugar in the large crusts and high fat content make BGs hard to manage even by using the pump to extend the bolus, or deliver the insulin over a long period of time. Papa Murphy's pizza, however, doesn't seem to have the same effect.  We get loads of vegetables (and yes, pepperoni) on it, and pre-bolus. The insulin is set up to deliver 60% right away and 40% over the following two hours.  Though it may also require another correction to keep him out of the dreaded 200s (which is like getting caught in the doldrums), he can eat, at least at home, what seems to have become the national food of teenagers. 

Changes

Today let's talk about changes, in one of two ways.  Either tell us what you'd most like to see change about diabetes, in any way.  This can be management tools, devices, medications, people's perceptions, your own feelings – anything at all that you feel could use changing.  OR reflect back on some changes you or your loved one has seen or been through since being diagnosed with diabetes.  Were they expected or did they surprise you?

In a word:  sleep.  Scott Benner of Arden's Day says that his post about how tired he sometimes looks has gotten the most hits.  Why do you think that is?  If you read around the DOC (Diabetes Online Community), sleep is a constant refrain among parents of children with T1D.  (I'm not going to post my no-sleep D-Parent photo, even for increased traffic.)

Sleepless nights.  Zombie days.  Sometimes, it feels like my brains are liquefying.  He goes low some nights because of exercise, because he's not growing today, because no reason.  And, I can't. go. back. to. sleep.  If I do, I might actually sleep and he might go low again.  I might miss it. So why, I was once reasonably asked, not give him carbs before bed, run him higher so that I can sleep?  Well, here's a secret:  once in a very great while, I will.  Not really high, mind you, but just a little higher. Sleep is so sweet. 

This is not something that I can, out of love, do long term.  I can't risk future complications by letting his blood glucose always be high at night. He won't feel good in the morning, and the day will follow suit.  On good nights, I can fine tune the basal rate and his BG is normal, as good as mine would be with a normal pancreas.  I take advantage of those nights to give him the best average BG and best possible chance for a long, normal lifespan.  I get more sleep, glancing at my Nightscout and going back to sleep.  The basal rates will be like the perfect idle setting on an engine.  And then, it isn't.  

One night, I got the brilliant idea that while waiting (treat, wait 15 minutes) I'd practice some yoga.  I made up that first pose, butt in the air, head on the ground.  Slept well in that pose on his rug.  A 3 a.m. check of Facebook shows I'm not alone, and I've messaged friends "You up?".  Like the Apostles, I fell asleep trying to pray. So cold sometimes, I'll just sneak back under the covers for just a moment....Nope.  Get up, trip over the dog.

The change I want seems impossible.  I want parents to sleep and not have to get up to tickle the bottom of their child's foot to see, to not put a hand to their abdomen.  I want them not to feel guilt because they missed the alarm and it got serious.  I want them to have the energy to get through their next day.  I want people who can't sleep one night to realize you are telling someone who will not sleep through the night until their child is an adult, and maybe not even then.  I want to sleep.

Addendum:  My first thought this morning was "oh, that was an incredibly selfish way to answer that question". Sleep is elusive and craved but the reason for the lack of it should be clear:  unchecked lows can result in emergencies and death.  Adolescents and teens often don't wake to a fire alarm, much less a low that makes you drowsy and unresponsive.  So, more to the point, I guess I would like a way to ensure that my son is safe at night.  The CGM helps but isn't fool-proof.  Neither am I.  But, it's the best we've got right now.

Clean It Out

Today’s topic is Clean it Out.  Yesterday we kept stuff in, so today let's clear stuff out.  What is in your diabetic closet that needs to be cleaned out?  This can be an actual physical belonging, or it can be something you're mentally or emotionally hanging on to.  Why are you keeping it and why do you need to get rid of it?  (Thank you Rick of RA Diabetes for this topic suggestion.)

One impact of the Great Depression was the mindset that one must never throw out something that one might use one day.  I know that lately I've aged at an accelerated rate, so before you get ahead of yourself, no, I'm not that old.  My husband and I, however, were raised and influenced by people who did experience the Depression.  It is hard for me to throw things out.  If I want to be rid of them, I must find someone to whom I can pass "treasures".

These canisters, reminiscent of film canisters (and yes, I am that old), hold 50 strips for testing blood glucose.  Using one every four to six days, I saved a basket of them.  They perfectly hold quarters in my car.  They could be used for craft projects!  Someday, someone might have a use for them!  One day, I realized I would need a bigger basket. Or..gasp...throw them out.  Recycling them mildly reduced the guilt.  I'm sure tomorrow someone is going to need them.

Keep it to Yourself

Today's Prompt:  Keep it to Yourself.  Many of us share lots of aspects of our diabetes lives online for the world to see.  What are some of the aspects of diabetes that you choose to keep private from the internet?  Or from your family and friends?  Why is it important to keep it to yourself? Simply let us know what kinds of stories we will never hear you tell, and why you won't tell them.)

"What you don't know can't hurt you".  Hopefully, you will never know.  Type 1 Diabetes is relatively rare.  Yet, I knew two people that have it before his diagnosis.  But I didn't know them, not really.  Until you live with this, you don't know.  And likely, I'll not be the one making sure you feel the full force of knowing.  

It's not that, moving forward, I will write only of the good things, of our successes.  Some of what we experience might help others, might raise awareness, might save one child.  If I thought that going Full Monty would be of benefit, I would.  But the truth is, most people don't want to know, not really. They want to be assured he is okay and we are handling it.  And we are.  But that's not the whole story.

I Can....

This week is Diabetes Blog Week.  Participants sign up to blog each day of this week and write in respond to a provided prompt.  My blog, started back in the dark ages, is not a diabetes blog. I thought about starting another blog that was just about diabetes, but Lifetime Learning seems to fit. Few challenges in life require more learning for a lifetime than a diabetes diagnosis. And though diabetes inhabits our thoughts every hour of every day, we still learn and laugh and make all kinds of messes in the rest of our lives.   But this week, I will try to keep up with the writing prompts and write about diabetes.  If you are just here to find out what fool thing I've done lately and really don't want to read about diabetes, come back next week.  I won't mind.

Today:  "I can..."

The arrow turned quickly.  From everything was hunky-dory to a straight down arrow meaning that it was headed to the toilet.  That's how fast our life turns on a pin and in seconds.  The arrow has become part of our lives.  They jump out at me now.  That arrow means to exit the highway, but my mind see blood glucose rising.  This arrow means "one way"; I read that all is steady and good.  It's kind of like when you are pregnant: everyone is pregnant.  When your life is governed by a continuous glucose monitor, you see arrows everywhere.

I still fight to stop the ice water dumping into my veins when I see that down arrow, or worse yet and thankfully rare right now, a double down.  It has been over a year since I can see a continuous readout of how we are doing, and I am learning.  I am learning to calm down.  (I need the t-shirt: Calm Down and Eat Carbs.)  I am learning that though I am at any moment subject to an emergency, that I can handle it and better yet, so can he.  "I'm fine, Mom," he'll say.  I pace.

Reading online about the experiences of others and with my experiences, I've figured out that William and I have this.  It's still scary sometimes, some shake-your-head moments, and I'm still dead tired but I can do this.  I can.